Katie has had the flu/cold for about a week and although we have seen some small changes - I am going to wait to comment about those until she is feeling better. I want to make sure these changes are not just due to lack of energy. However, one change I am going to talk about is her lips! Having low muscle tone affects Katie's face (muscles) so her mouth has always hung open a bit and she tends to drool. One of her doctors (probably the neurologist) told us that when her tone gets better we will see it in her face, I think he meant it might not be so round and filled out - that maybe she will get some cheekbones! So yesterday, one of Katie's caregivers was here and said to me, "Her face looks different, her lips are tighter!" I had noticed this too, but wanted to see if she would notice it without me saying anything to her. So I've included a few pictures: on the top, her "before" (actually taken right before the transfusion) and then one I took today where you can see her pursing her lips. This is new, she has never tightened her lips like this before, and she keeps doing it.
Thursday, January 21, 2010
Lips!
Katie has had the flu/cold for about a week and although we have seen some small changes - I am going to wait to comment about those until she is feeling better. I want to make sure these changes are not just due to lack of energy. However, one change I am going to talk about is her lips! Having low muscle tone affects Katie's face (muscles) so her mouth has always hung open a bit and she tends to drool. One of her doctors (probably the neurologist) told us that when her tone gets better we will see it in her face, I think he meant it might not be so round and filled out - that maybe she will get some cheekbones! So yesterday, one of Katie's caregivers was here and said to me, "Her face looks different, her lips are tighter!" I had noticed this too, but wanted to see if she would notice it without me saying anything to her. So I've included a few pictures: on the top, her "before" (actually taken right before the transfusion) and then one I took today where you can see her pursing her lips. This is new, she has never tightened her lips like this before, and she keeps doing it.