Wednesday, March 22, 2017


Had a birthday party with a bounce house and lots of friends... Katie's aunts and cousins came to visit (my sisters) and it was SO FUN! It's been a crazy few weeks.  Here's a cute picture I took today and I will write more when I get my house and life back in order 😑

Wednesday, February 8, 2017

tub time

Just a funny thing:  I have to give Katie a bath tonight, and I was thinking about how she's pretty good until I comb through the conditioner and rinse it off.  I have found that if I sing to her (and believe me I am no singer) she enjoys it and laughs, most likely at me. Hey, whatever works! The latest song is 50 Ways to Leave Your Lover, and she loves it!  Kudos to Paul Simon.

p.s. My nephew just got accepted to Berklee School of Music (yay!) and they have a class on Paul Simon.  How cool is that?!

Hop off the bus Gus...

Thursday, February 2, 2017

Neurology: Genetics (Journal)

So, this is really fantastic news! Katie is now famous with an article about her mutation in Neurology: Genetics.  🙌 The hope is that her rare mutation will now be known about, and maybe we will find more people with this same mutation. This could lead to more grant money and hopefully more knowledge about this mutation and, well I don't know what else - but all good things!  This has been in the works for a while.  This is a very exciting moment in science and in our household!  🍻     

Here is the link:

Wednesday, January 11, 2017


January in Arizona 😎
So here's the kiddo looking like a teenager in her grown up shirt, so darn cute!

We had a great Christmas and she enjoyed opening ALL of our presents!

Monday, December 12, 2016

Funny kid!

Sometimes I feel bad because I hear of other people's kids saying funny things and I know the odds are against us that that will ever be the case with Katie.  And I just KNOW she would be saying some darn funny stuff!

For Christmas we seem to be collecting these (thanks Mom!) and have about 10 of them now.

This must be the new one from last year because I don't even remember it.  This is the only one Katie is interested in.  She keeps grabbing it and taking it to the couch and licking the plate of cookies!  See, she IS SO FUNNY!  This kid just cracks me up. 💖  

Friday, November 18, 2016

dancing kids

This video made my day!  A fun field trip - Katie gets dissed at the end, but she handles it well 😆

Thursday, October 20, 2016


My last post was all about what an irritable child Katie had been for about a month or so. I blamed it on the slight change in weather from over 100 degrees to the 90's ... incorrect.

I stopped giving Katie the B-12 shots in August.  I had been giving her a shot every 3rd night for about a year or more.  It was getting hard for me to give her a shot in her bottom when she looks at me like I am a demon, that's basically why I stopped.  Besides "the look" she was giving me, there was a lot of yelling, etc... so I just stopped.

Why it took me so long to put two and two together I don't know, but I did and ordered those shots as soon as that light bulb went off.

Katie had a half day at school a few weeks ago and those shots were delivered to my door that morning. She came home, ate lunch, and was ready for a nap. I put her in bed and gave her a quick unexpected shot and she was off dreaming about cookies.

When she woke up, I SWEAR she was in a better mood!  I called my sister and told her and we both thought it (or maybe I) was crazy!

So the moral of this story is that it seems that the B-12 shot is what is helping Katie's mood, energy etc... and without it she is demonic, haha! Now I am the demon again... but I don't care she is getting that shot!

The funny thing is that I gave myself a shot in my rear to see how it would affect me and I wasn't even sure if I actually did it because I felt NOTHING! These shots are so tiny and it takes a millisecond. I don't know why Katie gets so crazy.

I haven't gotten that possessed look from Katie yet, let's hope it stays that way.

Look!  My happy, smiley kid is back checking out some tree bark. She has been great ever since! B-12, I love you!

I had taken Katie to a naturopathic doctor where he suggested among other things, doing a test with  which told us Katie was low in B-12. That is why we put her on it. The test was $99 and was just a swab of the inside of her cheek and tells a lot of information.

Good stuff!

Friday, September 23, 2016


I think this kid is about the cutest thing ever! Of course I am partial, but I think most people would agree she's got some looks. I can claim the eyebrows, everything else is daddy. Still wondering when her eyes might turn blue...

So, she looks like such a nice kid here, but in actuality it has been a rough couple of weeks. She has been so irritable, cries at the drop of hat, been pinching herself at home and at school, just plain unhappy.  Ugh, I'm about to go crazy. This is not my kid.

I know for sure it's nothing to do with puberty, is it the terrible twos that never happened? Is it typical for a kid to be moody at 10 years old?  I don't know what the heck is going on.

We went to see the orthotist Monday to get her feet molded for shoe inserts and that was total hell!  I am so glad she didn't kick him, she was a nightmare. He thought that it is due to the change in weather - from 110 degrees to 99?  Well, he would know because he deals with these kids all the time so that is what I am going with. I am assuming it's just a matter of time until she gets used to the barometer change, then of course it will get cooler with more barometer changes..

Irritable is the best word I can think of to describe her, however, I once had a good friend tell me that most people use this word wrong.  Or maybe it was the word irritated, or aggravated. Either way I am aggravated due to my child's irritability.

 If you read this blog you must realize that my grammar and use of apostrophes and commas, etc.. are not my strong suit.  AT LEAST I DON'T USE ALL CAPS!  or no caps little i's and no punctuation that is the worst

Well, I am hoping it will be a good weekend with Katie and she can go back to her sweet self.  I think I've aged a few years these last couple weeks... 

Wednesday, September 21, 2016

Adaptive PE

Katie's Adaptive PE teacher at school is working with her specifically on goals from her 3 week summer program.  Here is a short video of Katie in action.

Adaptive PE at school