Katie's Progress

Friday, February 14, 2025

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 How is time flying by so fast?  Katie is almost 19, crazy.  Here is a pic from this morning, ready for Valentine's Day!  We are all doi...
Thursday, September 7, 2023

Therasuit Therapy

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 Katie went through Therasuit therapy this summer to help with balance, etc... This helps her so much! In each video, Tom the therapist expl...
Wednesday, June 14, 2023

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 Here I am a year and a half since my last post, well... life.  That's to blame.  I don't know if anyone besides my family reads thi...
1 comment:
Tuesday, October 19, 2021

Dog

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 Yeah, so I 've been terrible at posting since COVID started.  We are all fine and we have all had the vaccine with basically no symptom...
Wednesday, May 12, 2021

school chef

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I love this picture and for some reason it reminds me of a Seinfeld episode!   Katie always has fun at school, even when it involves vegetab...
Tuesday, March 2, 2021

Masks and allergies

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 Well Katie's been back to school full time for awhile now.  I'm not sure who is happier...  The school is very cautious and she has...
Thursday, September 3, 2020

Ugh!

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 Ugh!  We're hanging in there.  This online school stuff is not easy.  I have to be on with Katie from basically 8 am - 12 pm.  Plus I d...
Friday, March 6, 2020

Hello!

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Well a few days turned into about 2 months... 😖 In October, Paul and I went to Northwestern University to see Dr. Swanson and his lab.  ...
1 comment:
Friday, January 10, 2020

I'm back! Briefly...

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Ok, so the bald spots are gone! I have a lot to say but it may be next week. Just been busy! Here are some cute recent pics: Hallow...
Friday, August 16, 2019

Bald spots!

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I was giving Katie a bath and washing her hair and noticed two bald spots on top of her head! 👀 YIKES! They are each about the size of a...
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about Katie

Amy
Katie was diagnosed with hypotonia at age 1, which is basically weak muscles, not really a true "diagnosis". We have no idea why she has this, but it delays her in many areas such as crawling, sitting, walking, talking, and fine motor skills. Katie is now 10 years old and she started walking about 4 years ago but still unsteady. Her coordination and balance are something we are constantly working on. She did wear glasses from ages 2-4 and then her vision improved and she doesn't need them anymore, which is so great! Getting glasses on her was not easy - had to come from behind and put them over her head that way. It's nice not to have to worry about getting the glasses on her any more! Katie can totally understand what you say, nods her head for "yes", has a few signs (for "more" and "me") but still is not able to talk much at all. Maybe a few words. Katie is a work in progress!
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